Heartbeat Forward  ·  Programs

Medical intervention
saves lives.
Support sustains them.

Structured, compassionate programs designed to meet the practical, emotional, and developmental needs of children with CHD and the families who care for them.

Care Packages Emotional Support Creative Arts Advocacy
Survival is the beginning. Support is the future.
Our approach
Our work bridges the space between clinical treatment and human experience. Because what happens after the surgery matters just as much as the surgery itself.
01
Care Packages

Hospital-ready care
for children with CHD.

A pediatric cardiac unit can feel overwhelming. Bright lights. Monitors. Procedures. Uncertainty. Heartbeat Forward delivers thoughtfully curated, age-appropriate care packages to children hospitalized with congenital heart defects.

For a child with CHD, a hospital room becomes part of childhood. Our goal is to restore moments of safety and normalcy within that space.

Reduce anxiety before and after heart surgery
Provide comfort during extended hospital stays
Offer sensory regulation tools
Encourage creative expression and resilience
Tailored to the child's age and developmental stage
02
Emotional Support

Support for the whole family.

A congenital heart defect diagnosis affects an entire family system. Parents face medical decision-making, long-term uncertainty, financial strain, and emotional exhaustion. Siblings experience confusion and fear. Many families report profound isolation.

Caregiver stability directly influences child wellbeing. Supporting families is not secondary to treatment. It is essential to it.

Family-centered encouragement resources
Written materials grounded in pediatric health psychology
Peer-informed guidance for navigating hospital systems
Stress-management tools for caregivers
Awareness materials that validate lived CHD experience
03
Creative Arts

Resilience is
cultivated.

Research in pediatric healthcare consistently demonstrates that creative expression supports emotional processing, reduces stress, and strengthens coping mechanisms in medically complex children.

Children with CHD often endure repeated procedures and long hospitalizations. Creativity restores agency in environments where control feels limited.

Guided visual art activities for children recovering from heart surgery
Storytelling and reflective writing prompts for pediatric patients
Music-based engagement to reduce procedural anxiety
Play-centered therapeutic experiences
04
CHD Awareness

Visibility
changes outcomes.

Congenital heart defects remain under-recognized in public health conversations despite their prevalence and impact. More children die each year from CHD than from all childhood cancers combined. Yet CHD awareness receives significantly less visibility and funding.

When society understands CHD, families feel less alone. That is not a soft outcome. It is a life-changing one.

Educational publications and monthly insights
Community-based CHD awareness initiatives
Public-facing advocacy campaigns
Strategic partnerships with healthcare professionals
05
Partnerships

Sustainable impact
requires collaboration.

Heartbeat Forward actively seeks partnerships with hospitals, pediatric cardiology units, and community organizations to deliver programs directly to families navigating congenital heart defects.

Charitable support should integrate seamlessly with clinical excellence. We build partnerships grounded in that belief.

Transparency and accountability in every partnership
Ethical program delivery aligned with medical standards
Data-informed program refinement over time
Long-term relationships over transactional giving
Our Philosophy

Three principles.
Every program.

Every Heartbeat Forward initiative is guided by the same three principles. They are not aspirations. They are standards. They shape every care package we send, every resource we publish, and every partnership we build.

Congenital heart defects do not end after surgery. The journey continues through childhood, adolescence, and adulthood. Our programs exist for the long haul.

01

Compassion in Delivery

Every interaction with a child or family is an opportunity to reduce suffering. We take that seriously at every stage of program design and execution.

02

Clarity in Communication

Families navigating CHD do not need more confusion. We communicate clearly, honestly, and with deep respect for the people we serve.

03

Consistency in Presence

We are not a one-time gesture. We are a sustained presence in the lives of CHD families for as long as they need us.

If you are ready
to move this
mission forward.

Whether you are a hospital, a donor, a caregiver, or a community leader, there is a way for you to be part of this work. We invite you to connect with Heartbeat Forward.

I
A hospital seeking structured CHD family support programs
II
A donor committed to pediatric heart health
III
A caregiver looking for congenital heart disease resources
IV
A community leader invested in child health advocacy

Survival is the beginning.
Support is the future.

Together, we move congenital heart defect awareness, support, and compassion forward. One care package, one conversation, and one creative moment at a time.

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Heartbeat Forward
About
Congenital Heart Defects
Book
Heartbeat Forward Scholarship
Journal
The Day You Hear The Diagnosis
The First 90 Days After Diagnosis
Heart Surgery Parent Guide
Parent Mental Health Guide
Financial & Insurance Guide
Recovery After Surgery
Feeding & Nutrition Guide
Sibling Support Guide
School & Educator Support Guide
Talking to Your Toddler About CHD Guide
Helping Children With CHD at School Guide
Helping Children With CHD Navigate the Tween Years Guide
Helping teenagers aged 13 to 18 navigate CHD guide
Programs
About The Founder
Donate
Get Involved
Contact
Heartbeat Forward
About
Congenital Heart Defects
Book
Heartbeat Forward Scholarship
Journal
The Day You Hear The Diagnosis
The First 90 Days After Diagnosis
Heart Surgery Parent Guide
Parent Mental Health Guide
Financial & Insurance Guide
Recovery After Surgery
Feeding & Nutrition Guide
Sibling Support Guide
School & Educator Support Guide
Talking to Your Toddler About CHD Guide
Helping Children With CHD at School Guide
Helping Children With CHD Navigate the Tween Years Guide
Helping teenagers aged 13 to 18 navigate CHD guide
Programs
About The Founder
Donate
Get Involved
Contact
About
Congenital Heart Defects
Book
Heartbeat Forward Scholarship
Journal
Folder: Resources
Back
The Day You Hear The Diagnosis
The First 90 Days After Diagnosis
Heart Surgery Parent Guide
Parent Mental Health Guide
Financial & Insurance Guide
Recovery After Surgery
Feeding & Nutrition Guide
Sibling Support Guide
School & Educator Support Guide
Talking to Your Toddler About CHD Guide
Helping Children With CHD at School Guide
Helping Children With CHD Navigate the Tween Years Guide
Helping teenagers aged 13 to 18 navigate CHD guide
Programs
About The Founder
Donate
Get Involved
Contact